Von Hippel-Lindau Syndrome

Implications for Nursing Care

Suzanne M. Mahon, RN, DNSc, AOCN®, APNG; Laura Waldman, MS, CGC


Oncol Nurs Forum. 2012;39(6):533-536. 

In This Article


Von Hippel-Lindau syndrome (VHL) is an autosomal dominant inherited disorder characterized by the formation of both benign and malignant tumors and cysts in various parts of the body. Identification of individuals and families affected with this disorder is imperative to implement appropriate screening measures so as to detect complications early and to reduce the morbidity and mortality associated with the diagnosis.