Part II: Clinical Practice Guidelines for Adolescents and Young Adults With Down Syndrome: 12-21 Years

Susan Van Cleve, MSN, RN, CPNP; Sheila Cannon, MEd; William I. Cohen, MD


J Pediatr Health Care. 2006;20(3):198-205. 

In This Article

Anticipatory Guidance

  • Discuss issues related to transition to adulthood.

  • Review plans for school placement and plans after high school graduation. Review future vocational plans.

  • Discuss plans for alternative long-term living arrangements such as Community Living Arrangements. Parents should update estate planning and custody arrangements.

  • Emphasize the importance of a well-balanced diet and routine exercise.

  • Encourage good dental hygiene with twice-a-day tooth brushing. Reinforce the importance of good self-care skills (grooming, dressing) and functional skills (money handling).

  • Continue subacute bacterial endocarditis prophylaxis in adolescents with cardiac defects.

  • Encourage social and recreational programs with friends.

  • Discuss sexuality and socialization and the need for and degree of supervision required. Review options for contraception if the teen is sexually active. Make recommendations for routine gynecologic care.

  • Monitor the family's need for supportive care or counseling, respite care, and behavior management techniques.

  • Adolescents may register for voting and Selective Service at age 18 years.

  • Facilitate transfer to adult health care.


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