Part II: Clinical Practice Guidelines for Adolescents and Young Adults With Down Syndrome: 12-21 Years

Susan Van Cleve, MSN, RN, CPNP; Sheila Cannon, MEd; William I. Cohen, MD


J Pediatr Health Care. 2006;20(3):198-205. 

In This Article


  • Review interval medical history and parental concerns. Identify current level of functioning, with an emphasis on level of independent functioning.

  • Review recent illnesses, hospitalizations, or symptoms of health problems, with special attention to possibility of obstructive sleep apnea.

  • Discuss school placement and review the transition plan from school. Transition planning begins at age 14 years. Discuss possible vocational training within the school curriculum. Review school progress, IEP, and any additional services the child is receiving in school. Psychoeducational evaluations should be performed by the school every 2 years as part of the IEP.

  • Prepare for the transition in health care to an adult provider (family physician, internist, family or adult NP).

  • Review socialization, family status, and relationships, including financial arrangements, including SSI and guardianship.

  • Review yearly thyroid screening and audiologic, dental, and ophthalmologic evaluations.


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