When is patient education about amyotrophic lateral sclerosis (ALS) provided and what resources are available for patients and their families?

Updated: Jan 02, 2020
  • Author: Divakara Kedlaya, MBBS; Chief Editor: Ryan O Stephenson, DO  more...
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Answer

Answer

Provide patient education at the time of diagnosis and throughout the course of disease. There are many resources available to patients with amyotrophic lateral sclerosis (ALS) and their families. Provide the names and numbers of local support groups as soon as the diagnosis has been confirmed. Some excellent online resources for physicians and patients include the ALS Association, World Federation of Neurology - Amyotrophic Lateral Sclerosis, and American Academy of Neurology.

For patient education information, see the Dementia Center and the Brain and Nervous System Center, as well as Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease), and Dementia in Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease).


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