Where are professional resources found for the diagnosis and management of porphyria?

Updated: Aug 31, 2020
  • Author: Brenda Chiang, DO; Chief Editor: Emmanuel C Besa, MD  more...
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Answer

Answer

A listing of experts, testing, and centers of excellence in the porphyrias is available at the American Porphyria Foundation Website (www.porphyriafoundation.com).

The European Porphyia Initiative (EPI) (www.porphyria-europe.org) network was formed in 2001 to compare the experience among countries in an attempt to develop a common approach to the management of the porphyrias. [109]


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